a lonely feeling
is all around this webpage
can't find one like it
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Data Privacy Policy
We are committed to protecting the privacy and security of your personal information. This notice describes how we collect and use your personal data submitted ...
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Approaching confidentiality at a familial level in genomic medicine: a focus group study with healthcare professionals.
ObjectivesClinical genetics guidelines from 2011 conceptualise genetic information as confidential to families, not individuals. The normative consequence of ...
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Genomic variant sharing: a position statement.
Sharing de-identified genetic variant data is essential for the practice of genomic medicine and is demonstrably beneficial to patients. Robust genetic ...
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World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonization Project: II. Clinical and covariate phenotype data collection in endometriosis research.
OBJECTIVE: To harmonize the collection of nonsurgical clinical and epidemiologic data relevant to endometriosis research, allowing large-scale collaboration. ...