The ethical challenges of diversifying genomic data: A qualitative evidence synthesis
Journal article
Hardcastle F. et al, (2023), Cambridge Prisms: Precision Medicine, 1 - 39
Retrospective Cohort Study on the Limitations of Direct-to-Consumer Genetic Screening in Hereditary Breast and Ovarian Cancer.
Journal article
Desai NV. et al, (2023), JCO precision oncology, 7
Discussion of off-target and tentative genomic findings may sometimes be necessary to allow evaluation of their clinical significance.
Journal article
Horton RH. et al, (2023), Journal of medical ethics
Ethical preparedness and developments in genomic healthcare.
Journal article
Farsides B. and Lucassen AM., (2023), Journal of medical ethics
Facilitating genetic testing after death: the ongoing duty of care to the deceased and their relatives.
Journal article
Dennis C. et al, (2023), Journal of the Royal Society of Medicine, 116, 193 - 198
Interventions to support patients with sharing genetic test results with at-risk relatives: a synthesis without meta-analysis (SWiM).
Journal article
Ballard LM. et al, (2023), European journal of human genetics : EJHG
Utility of polygenic risk scores in UK cancer screening: a modelling analysis.
Journal article
Huntley C. et al, (2023), The Lancet. Oncology
Immortal data: a qualitative exploration of patients' understandings of genomic data.
Journal article
Lyle K. et al, (2023), Eur J Hum Genet
Realistic expectations are key to realising the benefits of polygenic scores
Journal article
Sud A. et al, (2023), BMJ (Clinical research ed.), 380
Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison
Journal article
Horn R. et al, (2022), European Journal of Human Genetics
Ethical preparedness in health research and care: the role of behavioural approaches.
Journal article
Samuel G. et al, (2022), BMC medical ethics, 23
Genetic risk scores may compound rather than solve the issue of prostate cancer overdiagnosis.
Journal article
Horton RH. et al, (2022), British journal of cancer
Ethical issues raised by new genomic technologies: the case study of newborn genome screening
Journal article
Horton R. and Lucassen A., (2022), Cambridge Prisms: Precision Medicine, 1 - 16
Exploring how biobanks communicate the possibility of commercial access and its associated benefits and risks in participant documents
Journal article
Samuel G. et al, (2022), BMC Medical Ethics, 23
Access to Biobanks: Responsibilities Within a Research Ecosystem.
Journal article
Samuel G. and Lucassen A., (2022), Biopreservation and biobanking
A digital pathway for genetic testing in UK NHS patients with cancer: BRCA-DIRECT randomised study internal pilot.
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Torr B. et al, (2022), Journal of medical genetics
Beyond regulatory approaches to ethics: making space for ethical preparedness in healthcare research.
Journal article
Lyle K. et al, (2022), Journal of medical ethics
Reclassification of clinically-detected sequence variants: Framework for genetic clinicians and clinical scientists by CanVIG-UK (Cancer Variant Interpretation Group UK).
Journal article
Loong L. et al, (2022), Genetics in medicine : official journal of the American College of Medical Genetics
Ethical Considerations in Research with Genomic Data.
Journal article
Horton R. and Lucassen A., (2022), The New bioethics : a multidisciplinary journal of biotechnology and the body, 1 - 15
Environmental sustainability and biobanking: a pilot study of the field
Journal article
Samuel G. et al, (2022), New Genetics and Society, 41, 157 - 175